DEBRA (Dystrophic Epidermolysis Bullosa Research Association)
Organization for EB patient assistance
http://www.debra-international.org/

ORPHANET - Database for rare diseases and dedicated medication
http://www.orpha.net/consor/cgi-bin/home.php?Lng=GB

EB patients and families assistance network
http://www.ebinfoworld.com/

Paper about epidermolysis bullosa, by M Peter Marinkovich
http://www.emedicine.com/DERM/topic124.htm

International EB forum
http://www.internationalebforum.org

EB research center network in Germany
http://www.netzwerk-eb.de/content/index_eng.html